July 26, 2018
This morning, your mother and I met with the third, and most elite specialist team in the area. All of the doctors continue to mesmerized that you are still with us. Along with new teams of doctors comes an opportunity to share our hope in Christ with them. You have impacted so many lives already. A prayer was said for you the other night that stuck with me. Cyndi Vela prayed that the Lord would prepare the hearts of the doctors for what they are about to experience in treating you and your mother. She prayed that opportunities would arise where the Lord’s glory be shown to those who may not know Him. With every little bit of bad news, comes an opportunity for us to share our hope in Christ, step back, and view exactly what it is that He is doing here. He is using you, and us, as a platform to share the hope that we have in Him. In the book of Daniel, chapter 3, Shadrach, Meshach and Abednego, when confronted by King Nebuchadnezzar to bow down before him, were thrown into a fiery furnace. They believed that the Lord would deliver them from the flame, which He did! They said, “but even if He does not deliver us, we will still only serve Him.” Your mother and I have never doubted that the Lord can and will provide a miracle for you, but even if he doesn’t we will still give Him the glory. We don’t know exactly how and why He chose you to be sick, but we will continue to seek His face and give Him the glory, at every opportunity.
We have finally found a probable cause of the Hydrops. You have a condition called “Noonan Syndrom” which affects your heart, lymphatic system and kidneys. This does not change our course of action, but simply gives us some insight and answers the question of what is causing the fluid accumulation. Your mother is entering the early stages of “Mirror Syndrom.” She loves you so much that her body is trying to take away any pain and discomfort from your body, and put it on her own. This is tough for your mom, but she would do anything in the world to take your place, if she could. We both would.
Your big brother knows you. He knows where you are (in Momma’s tummy), he knows your name and gives you kisses every night before bed. If asked, where is Owen, he will immediately run over to Momma and point at you and give you kisses. He loves you dearly, as we all do. Continue to fight buddy. We love you desperately.
It feels like we didn’t get much good news from the doctors today, but you are still with us and as long as the Lord gives you to us, we will fight with and for you and continue to be your voice. We love you son. So deeply. And to think that our Heavenly Father is cradling you in His palm, gives us peace. Thousands of people are praying for you, our family, and for Owen’s miracle.